ReCoDID’s Annual Meeting, 6-8 May 2020

By ReCoDID

On May 6-8 2020, the Annual Meeting of the ReCoDID research project, funded by both the EC and CIHR, gathered 39 members who provided updates on the project’s scientific developments over the last year. The meeting was originally planned to take place in Bucaramanga, Colombia. However, because of the current COVID-19 outbreak and travel restrictions, partners were invited to attend a virtual meeting.

The meeting included presentations and updates on the latest scientific and operational developments, including: ethics requirements; political, ethical, administrative, regulatory and legal barriers and solutions; reconciliation of clinical epidemiological (CE) data across cohort studies; development of novel statistical methods to facilitate the development of prognostic models in the research response to an emerging pathogen; integration of pathogen- and host- related OMICS data; the development of a local governance model and searchable portal for decentralized cataloguing of data repositories and biobanks; next steps for stakeholder consultation; and routine management and dissemination issues.

Cross-cutting sessions engaged work package teams in discussions on novel uses for the federated platform including a focused discussion on ReCoDID’s collaboration with external partners and existing networks to address COVID-19. An agreement was reached with the European Commission to expand funding and establish an additional Work Package solely dedicated to this contribution. Cross-work package discussions also addressed challenges to ethical and equitable sharing of clinical-epidemiological, OMICs and sample data, including benefit sharing, creating an easy-to use interface for cohort staff, applying FAIR principles to curation of study metadata and participant-level data; and fostering sustainable connections with other data sharing initiatives. Dr. Isabel Fortier, the PI of the Maelstrom Research Group (https://www.maelstrom-research.org/) led a presentation on best practice for retrospective harmonization.  Drs. Carla Saenz (PAHO) and Abha Saxena (University of Geneva) provided comprehensive feedback on ethical challenges and potential ways forward for cross-national sharing of different datatypes.

The ReCoDID project has received funding from the European Union’s Horizon 2020 Research and Innovation Programme under Grant Agreement N.825746 and is supported by the Canadian Institutes of Health Research, Institute of Genetics (CIHR-IG) under Grant Agreement N.01886-000

For more information about ReCoDID or ReCoDID’s activities, please contact Thomas Jaenisch (Scientific Coordinator) at thomas.jaenisch@cuanschutz.edu ; or Johannes Boucsein (Project Manager) at johannes.boucsein@uni-heidelberg.de

The ReCoDID project has received funding from the European Union’s Horizon 2020 Research and Innovation Programme under Grant Agreement N.825746 and is supported by the Canadian Institutes of Health Research, Institute of Genetics (CIHR-IG) under Grant Agreement N.01886-000